When Scott got up I asked if he wanted some eggs or oatmeal...he said "eggs, sausage and toast please" WhOOt!! go Scott go. I think the relief of knowing he does not have a bad case of GVH (which in it's worst state can kill you) must have jump started his appetite! Scott will post more later...enjoy the day.
Betty
Today I morn the loss of my two polyps. Gone is a part of me that I will not soon forget. All I have left is the photos the Doctor gave me after the procedure. The procedure went well, I don't remember a thing and I slept all the way home. No pain, just a lot of gas after. The Doctor said everything looked normal and I will get the complete results next week. The worst part is drinking the movi-prep.
God Bless,
Scott
Scott, it's good you had your colonoscopy and they removed the polyps. The procedure is not bad, it's the prep that is terrible. While you sleep through the procedure, I wonder if the Dr. jokes around and says stuff like, this polyp looks like Richard Nixon. Take care
ReplyDeleteScott, I've been off the grid for some time, but never failed to check up on you! The colon caper turned out well, thank God.
ReplyDeleteI recently had an allogenic tp using my sister as my donor. I only have one sibling and she was a 10/10 match. Talk about luck!
The transplant went well on July 3. With just a few rocky days I made a good recovery and was discharged to a nearby hotel on July 18, since I continue to be monitored at the hospital clinic and we live too far from the hotel to stay at home.
Today is our 5th day in the hotel and "Sherleta" (Sherry + sister Aleta) is19 days old. She hasn't left the hotel yet. The fatigue factor is huge. Luckily I have been spared many other issues that can affect your gut, skin, etc. My body began to graft right away with my sisters cells and I only required 1 unit of platelets before all my blood counts recovered. They have had to give me IV magnesium but everyone gets that as the immunosuppressant drugs deplete it.
Yesterday we spent a couple hours sorting and bagging meds & line flushes for the next 2 weeks. I'm taking 32 pills and 1 shot per day. I have become a real high maintenance patient.
I told Larry I feel shitty most of the time. Eating is work since everything tastes awful. Drinking also an effort, but need to try to keep the drugs flushed from my body. Imagine how I'd be feeling without all those meds? My body would be at Civil War!
I am no where close to the end of the dangerous first 100 days where grafting issues can arise quickly, but I'm doing very well so far.
It's hard to be patient. I hate that the smallest amount of exertion makes we want to go lie down. Although I remain positive about the outcomes, I'm doing some "hard time" here in Charleston at the moment.
Your breakfast looks good...the hound looks jealous
If you have any advice about beating the fatigue, I'd love some tips!
Here in Charleston, SC (Chucktown),
Sherry
Sherry Jackson
sherryjac2@mac.com