Day + 7 Today I will get platelets, tomorrow I will get red blood. My neutraphil count is now unreadable, so that means I'm bottomed out. My white count is .4, it was .5 yesterday. Time to be very good about hand washing. Most of my fingernails are about half on half off. Today I still feel OK, but not as good as yesterday. The storm approaches:( I didn't bring my electric razor this time because last time I got chemo I shaved my head once and never had to again. This time I have very fine hair and it continues to grow and they won't let me shave it with a razor. It sounds like later this afternoon we get to go back our old room:) Rick, the going rate for immuno globulin is $14,000.00 a dose.
God Bless,
Scott
Dear Betty and Scott -
ReplyDeleteI previously commented on one of Betty's posts from a few weeks back, but I wanted to write you both and thank you for sharing your candor, wit and strength through this ordeal. I don't know either of you, but feel as though I do. I have been all over the Internet these last few days and finding nothing that actually could help me put my hands (and brain) around having a SCT and what it entailed. My husband was diagnosed with MDS last year (age 58) after slowly losing his "steam." He used to run 3 or so miles a day and has always been active and in good health (we formerly were members of the Y, as well). He thought he was just getting older. Routine blood work showed a red blood cell defiency, which started this whole roller-coaster. He was originally diagnosed with low-grade refractory anemia, but after undergoing the (invasive, IMHO) ATG treatment last October, is now suddenly RAEB-Level 2. We were informed of that last Wednesday. He began Vidaza injections Monday, and we expect a SCT in August or September. He hasn't even told his brother (only sibling). It's been stressful. God bless both of you were sharing your journey and your faith. You will both always be in my prayers, and I wish you a successful and fast journey back home. PS - I've always had a true appreciation for teachers, nurses and police officers, but never more so than when I completed the police department's Citizens Academy where I live. That photo posted I saw of you shooting the "bad guy" reminded me of the night we entered the creepy "house" and those "bad Explorers" jumped us ... that was unforgettable, as well as having the "individual" I stopped in traffic suddenly find a pistol in his glove box! God bless you both, Elise
Oh only 14000 that's nothing ....glad to see your still posting. Stay strong see you soon
ReplyDeleteScott, I heard a lot of chemo patients have their hair come back thick and curly. We wont recognize you if that happens. Betty please take a photo if that happens. Take care, we are thinking of you two.
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