Locking the helmet on the motorcycle

March 24, 2012         
Room change 1687

No white blood cells yet. Scott got platelets and red blood last night which equals a terrible nights sleep but the good news it he has "hung on" to those blood products, which may be a sign  he is making a little bit of something . He is as down as you get...so we pray that this is the "darkest before the light" portion of our camping trip.

This is the day that the LORD has made. I wrote that on the whiteboard. It is Psalm 118:24  - we sing it at  church, Scott picked that one out for our wedding. I am not particularly fond of the melody, but the message is great. Scott agreed.

Docs just left. The donor white blood cells are expected to arrive tomorrow night. They will immediately start working on the pneumonia and he will feel worse. Hard to believe he could feel worse than he does now. GOD Bless him. He still does his breathing toy exercises, mouth rinses and occupational therapy exercises. He feels like he is dying, but the doctors and nurses assure him he is not, that it just feels like it. I think we have all had a fever for a day or two and remember how wiped out you feel. Dehydrated, weak, tired...well he has had he fever for 2 weeks +. Plus pneumonia.

New drugs today, one kind of like tums to try to help with his distended abdomen, Adavan(sp) to try to alleviate his fear of eating and relax him an allow him to sleep, and a new antibiotic.

So Shar, our tech yesterday came in and whispered that one of the bigger rooms opened up. The request had to come from the patient, so I said yes yes yes. When they came back later to tell Scott he was changing rooms he said no, then I threw him the look, and he said ok. The room is the same with about another 6X6 area between the foot of the bed and the TV. Perfect for the Wii when Scott is feeling better. I ordered a Wii fit with balance board. I read it is really good for rehab exercise and I figure we can ue it at home too, since I doubt I will even be going to the Y for fear of bringing home germs. The room also has 2 full sized windows about 7X7 each, the view is skyscrapers, and a tiny bit of the lake.

Yesterday Scott thought he had a taste for coco pebbles. I walked to the grocery store an got some. For dinner I poured a bowl and added the milk. He took one mouthful and threw up. He is living on ensures now. The nurse we have today is beyond excellent, she is one that tells you exactly what she is doing, what drugs you are getting, how much, what they do etc. and he listens to her. She suggested trying one solid food today, maybe a couple bites of oatmeal, something,, so I think he will try. Kathy, the nurse is so thoughtful, she suggested putting off the water pills that make him pee every 15 minutes until he got a nap from the Adavan. Smart Lady, and really cares. Thank you GOD for her.

It is amazing how your whole day can be filled up with doctors, trips to the bathroom, a shower for me, one for Scott, eating, and drinking, but it is. I suppose the fact that Scott is beyond exhausted and I am getting there does not help, but it is hard to even get this blog out some days!

Funny that 43 days ago we chuckled about a goal of a shower. Today we have that same goal and  it seems like a mountain to climb.


Keep the faith, keep praying, and go have some fun this weekend for Scott and tell us all about it.

Thanks everyone for being there.

Betty.